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Home
News
Events
Rare Disease Day 2020
Research
Postgraduate research projects
Undergraduate research projects
Multiomics for rare disease diagnosis
Carers Project Details
REDRESS_Rare_2020-2023
COVID-19
Charity_Survey
COCOON study: home & community delivered care
COVID-19 clinical impact
Shielding
IMPaCCT_study
Educational Resources
People
Past team members
Patient and public partners
Charity partners
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Rare Disease Focus: supporting rare disease throughout all communities
Rare Disease Focus: supporting rare disease throughout all communities
Latest News
Carer Identification Card
15 May 2024
Excellent meeting passionate North West group of carers supporting people living with rare diseases
8 March 2024
New survey seeking experiences of research by people living with rare diseases
29 February 2024
All-Ireland Children and Young Adults Research Advisory Group for Rare Diseases (RAIN CRAG) launched
29 February 2024
Dr Claire Hill at FameLab
21 February 2024
SAPROPTERIN ACCESSIBLE TO ALL AGE GROUPS IN NORTHERN IRELAND
17 January 2024
View all news
Latest Events
Rare Storytelling Webinar
16/07/2024 @
5:00PM - 6:00PM
Zoom online
Patient Engagement 101
19/06/2024 @
4:00PM - 6:00PM
Online
Carers NI Carer Policy Forum : NI Assembly Information Session
11/06/2024 @
1:00PM - 2:30PM
Online Zoom Session
Carers Week - Information Fair
10/06/2024 @
10:30AM - 2:00PM
Adair Arms, Ballymena
ERKNet/ESPN Webinar: "ADPKD in children" by Djalila Mekahli
4/06/2024 @
3:00PM - 4:00PM
Online
Online workshop for Carers of people living with rare disease in Northern Ireland
31/05/2024 @
10:00AM - 12:00PM
Online
View all events
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#RareDiseaseNI
Welcome to our Rare Disease Focus
Raising awareness & supporting rare disease throughout all communities